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CurePSP
Приєднався 23 лют 2009
CurePSP is the leading non-profit organization dedicated to the awareness, care and cure for 3 neurodegenerative diseases: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). As a catalyst for new treatments and a cure, we establish important partnerships and fund critical research. Through our advocacy and support efforts, we enhance education, care delivery, and quality of life for people living with PSP, CBD and MSA and their families. Science, community, and hope are at the heart of CurePSP’s mission and all of our services.
CurePSP is a registered 501(C)(3) charity within the United States. EID: 52-1704978. Our work is possible thanks to the generous donations and support of those in our community and beyond.
CurePSP is a registered 501(C)(3) charity within the United States. EID: 52-1704978. Our work is possible thanks to the generous donations and support of those in our community and beyond.
Speak Out! Speech Therapy and Voice Exercises, Gwen Nolan, MS, CCC-SLP
Speak Out! Speech Therapy and Voice Exercises, Gwen Nolan, MS, CCC-SLP
Переглядів: 186
Відео
Dignity Therapy and Life Review, Dirk Labuschagne, MDiv, MPH, BCC
Переглядів 1402 місяці тому
Dignity Therapy and Life Review, Dirk Labuschagne, MDiv, MPH, BCC
Empowering Well-Being: Insights from Patients and Care Partners
Переглядів 1092 місяці тому
Panel Speakers: Fraya and Mike Krukar and Eugenia Aguirre, moderated by Courtney Malburg
Maintaining Quality of Life Through Activity Engagement, Dudley Yacinthe, OTD, OTR/L
Переглядів 1192 місяці тому
Maintaining Quality of Life Through Activity Engagement, Dudley Yacinthe, OTD, OTR/L
The 20th Annual Southwest Florida PSP Support Group Awareness and Memorial Walk
Переглядів 1384 місяці тому
👟 Reflecting on the unforgettable memories from last year's 20th Annual Southwest Florida PSP Support Group Awareness and Memorial Walk in Marco Island, Florida! We cherished connecting with people from around the globe, sharing our stories and advocating together for our community. It was a beautiful day filled with laughter, volunteers, new friends and familiar faces as we honored and raised ...
Hope As Big As Texas
Переглядів 3045 місяців тому
The CurePSP Quality of Life Respite Grant provides direct support to those living with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). Learn More: www.psp.org/ineedsupport/respitegrant/
Multiple System Atrophy (MSA): Diagnosis, Treatment and Future Research
Переглядів 6 тис.7 місяців тому
Multiple System Atrophy (MSA): Diagnosis, Treatment and Future Research
Enhancing Accessibility and Independence in the Home
Переглядів 3157 місяців тому
Enhancing Accessibility and Independence in the Home
Live Q&A with Jennifer Brummet, PhD, Rachael Dorsey, MOT, OTR/L and Jessica Shurer, MSW, LCSW
Переглядів 1217 місяців тому
Live Q&A with Jennifer Brummet, PhD, Rachael Dorsey, MOT, OTR/L and Jessica Shurer, MSW, LCSW
Updates on Progressive Supranuclear Palsy(PSP) & Corticobasal Degeneration(CBD): Tale of Two Cousins
Переглядів 8 тис.7 місяців тому
Updates on Progressive Supranuclear Palsy(PSP) & Corticobasal Degeneration(CBD): Tale of Two Cousins
CurePSP Overview & Updates on Current Research
Переглядів 5717 місяців тому
CurePSP Overview & Updates on Current Research
Practical Strategies for Nutritional Health
Переглядів 1807 місяців тому
Practical Strategies for Nutritional Health
Live Q&A with Matt Beke, Alexandra Brandimore, Nikolaus McFarland and Jessica Shurer
Переглядів 2097 місяців тому
Live Q&A with Matt Beke, Alexandra Brandimore, Nikolaus McFarland and Jessica Shurer
Navigating Care Across the Diagnosis Journey
Переглядів 2217 місяців тому
Navigating Care Across the Diagnosis Journey
Managing Dysphagia: Tools and Tips for Success
Переглядів 4597 місяців тому
Managing Dysphagia: Tools and Tips for Success
Thriving Through the Constantly Changing Journey of PSP, CBD and MSA
Переглядів 1,5 тис.Рік тому
Thriving Through the Constantly Changing Journey of PSP, CBD and MSA
The Role of Patients and Care Partners in Multidisciplinary Team Care
Переглядів 369Рік тому
The Role of Patients and Care Partners in Multidisciplinary Team Care
The Role of Social Work in the Management of PSP, CBD and MSA
Переглядів 232Рік тому
The Role of Social Work in the Management of PSP, CBD and MSA
Palliative Care for Patients and Families with PSP, CBD and MSA
Переглядів 1,5 тис.Рік тому
Palliative Care for Patients and Families with PSP, CBD and MSA
Overview of Multidisciplinary Care for Patients with Atypical Parkinsonian Syndromes
Переглядів 237Рік тому
Overview of Multidisciplinary Care for Patients with Atypical Parkinsonian Syndromes
Navigating the Healthcare System: How to Advocate for Yourself and Your Loved One
Переглядів 341Рік тому
Navigating the Healthcare System: How to Advocate for Yourself and Your Loved One
Mobility Tips and Tricks for Individuals Living with PSP, CBD and MSA
Переглядів 3 тис.Рік тому
Mobility Tips and Tricks for Individuals Living with PSP, CBD and MSA
Live Q&A with Joanna Teters, Heather Cianci, PT, MS, GCS and Lauren Zelouf, MSW, LCSW
Переглядів 269Рік тому
Live Q&A with Joanna Teters, Heather Cianci, PT, MS, GCS and Lauren Zelouf, MSW, LCSW
Live Q&A with Jessica Shurer, MSW, LCSW and Andres Deik, MD, MSEd, FAAN
Переглядів 290Рік тому
Live Q&A with Jessica Shurer, MSW, LCSW and Andres Deik, MD, MSEd, FAAN
Bringing the Microscope to the Clinic: Improving Diagnosis and Treatment of PSP & Related Conditions
Переглядів 908Рік тому
Bringing the Microscope to the Clinic: Improving Diagnosis and Treatment of PSP & Related Conditions
W,dð
What hurts is being diagnosed as meth induced phychosis 😢 when it CTE ... Stupid doctor i know i don't do meth or anything else.
My father is diagnosed with PSP and we feel helpless because doctors say there is no cure for this disease . What should we do now ? any suggestion from anyone ?
I want to talk to you….. husband passed 2003.
This is the best, most complete, informative presentation I have ever seen, thank you Doctor.
If PSP May be a metabolic disease, wouldn’t it make sense to do a fecal transplant for most patients?
Charleston, SC
After going to "the best" Neurologists in New York, I am convinced that any person on the street could treat MSA just as well. That sounds very negative but if we are honest and evaluate what we are told after all the many tests we must come to the conclusion that Neurologists know next to nothing about MSA. Sad but true.
thanks for this
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms..”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain..”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
What medicine is it?
@@Herschelz the medicine is Dr Madida PD cure. You can find Dr Madida with a search of his name Dr Madida Sam on UA-cam.
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms.”My Dad is well a gain.”
Which medicine you use plz tell me i m from Pakistan
thank you
is there more. It does say on Wellness wednesday
Parkinson disease is a very terrible illness🤢, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain.”
I'm here 5 years later... Where's my tests at?! 😂
My name is David a Olsen. I was diagnosed with Parkinson’s disease in 2017. My symptoms have been changing since I’ve had the disease lately. My symptoms is when I’m standing still I’m rocking back-and-forth for no parent for no reason at all. I still have some mobility issues I’ve been going to therapy and I’m doing boxing for Parkinson’s but my balance, like falling tendency to fall backwards is still there. I have eye problems I’ve been going to a nuclear ophthalmologist. I was wondering if I was missed diagnosed and I have another question the DBS that use for Parkinson’s they want to do that on me would that help somebody that had PSP, or does that not work for that kind of disease? I hope I wasn’t misdiagnosed. If there’s any information you could give me it would be greatly appreciated. Thanks for all you do.
I'm Indian .I'm living with cte .plese find the cure
Plese find cure of the dieses ........plese plese plese as soon as possible at least halt the progression my memory is gone my everything is lost
Help me!
I'm in the process of finding out which form of FTD I have. It's looking like non-fluent / Broca's. I'm in the early days and I'm trying to educate myself and my family asap while I can. This UA-cams is unusable for me because there is SO much 'background music' that I can't follow what you are saying. I'm not just whiney; I want/need to understand what you're saying. Please turn back-ground music etc. in your vids? Thank you.
Can I get the big burger
ow
please control the functionable cerebellum for build to the movements, slower system has to be in therapy training in step by step faster with the right cerebellum actions and the movements beginning is with muscles fibers actions and not with the acivation of the tendeons developed by Gabriele Mayer professional therapist, researcher
I would like to see the urinary incontinence slide.
As someone recently diagnosed with vascular Parkinsonism appreciated this calm carefully curated presentation about the condition.
Thank you Dr. Fleisher for covering so many issues our community struggles with as they care for their loved ones. I'm certain everyone wishes they had you as their neurologist. Along with your medical experience you posses compassion for the patients and care partners you serve.
If PSP, Asymmetric parkison due to accumulation of Tau then is it any way out that we are able to reduce excessive tau protein and neuro health of person can be restored. Must be some cure ???
I lost my partner of 14 years just a month ago from MSA . It was an awful disease . I was his 24/7 caregiver . He truly suffered . I miss him so very much .
Dr. Fleisher is always so helpful! I always come away with new ideas and insight after listening! Thank you so much!
The Q&A was so very helpful!
Thank you so much!!!
It infuriates me that this video is 8 years old and yet progression in tackling this disease has gone exactly nowhere.
I just hit the heavy bag an my head is booming I think I need a tylenol 😂
oh i used to have this a lot you just need to hydrate more. and rest
Plese find the cure at least slow the progression .....plese plese find the researh
Yes very useful!
No word from the NFL about this….a disgrace .
My 75 year old father is some 80 % confirmed to have this, but parkinson's is most certainly a factor. Alot of the issues and symptoms line up and the last few years of history with him being at home seem to confirm a few things. He had hallucinations and weakness at home, would stop eating and drinking. eventually hospitalised with dehydration and such. Lost roughly half his Body weight in 6 months down to 54 kilos. Now has Postural hypotension so can't really walk far or stand long and has had several nasty falls (which new hospital 1000 % monitor now to ensure he doesn't fall again ) , bladder issues, REM disorder, sleep problems, but has been steadily improving the last 2 weeks at a new hospital. Have to tackle his depression, in order to get a Stomach endoscopy test done, to confirm if has had stomach cancer. Overall, his mental health has a good shot at recovery to a good extent, his physical issues are 50/50,
I fainted in front of government ndis worker maybe it was luck in getting budget reviewed faster 😂 1:00
Avec ça ont est sauvé. Tout ça pour ça.
Giving up isn't the best option, i never give up on myself and it helped me find Dr Madida Sam on UA-cam whom with his natural treatments cured my Parkinson Disease and meniere disease...
My father's symptoms started with urinary retention in 2019. In 2021, he showed signs of ataxic gait and slightly slurred speech. In 2023, he had episodes of syncope leading to orthostatic hypotension. The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
Below is the time progression of my father's symptoms. 2018 - High blood sugar 2020 - unable to empty the bladder completely 2022 - Slurred speech and loss of balance while walking 2023 - Fall of BP on standing and two episodes of unconsciousness that lasted 1 min The doctors are still not sure whether it's MSA-C because the MRI doesn't show any hot cross bun sign. He is 56 years old and currently undergoing treatment at AIIMS, Delhi.
My name is David a Olsen. I was diagnosed in 2017 with Parkinson’s disease but lately I have the symptoms of PSP and MSA I don’t know which one I really have. Some days are good some days or not. I have balance problems lately falling backwards, or the tendency to fall backwards. Luckily I’ve been able to catch myself now I have high blood pressure I have swallowing problems I have droolingand I have very bad hand coordination. I don’t know which one I have nothing seems to be working. It’s getting a little worse each year is is there any way to find out which one I really have thank you for any help you can give me
I was diagnosed with Parkinson's Disease in 2012. Later in 2017 I was diagnosed with Multiple System Atrophy, but have done my best with the huge support from the Multiple System Atrophy Coalition to spread awareness of MSA through documentaries and while displaying the MSA Beast my 1970 Dodge Dart as a rolling billboard for MSA awareness.
What were your symptoms???
@@RobdeKlerk-qg6lc my very 1st symptom was a tremor in my hands and blacking out when standing. It is extremely hard for an EMT-I to do an IV in the back of a rolling box going down the road.
@FightingMSA good luck my friend...breathing problems as well ?
@@RobdeKlerk-qg6lc correct.
@@FightingMSA Thank...my friend
excellent video - thanks for this